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Genetic testing for breast cancer: Psychological and social impact
Variant or unknown test results
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Positive test results
Negative test results
Uncertain test results
Living with test results
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Positive test results
Negative test results
Uncertain test results
Living with test results
Positive test results
If genetic testing shows that you carry a gene linked to an increased risk of breast cancer, you might have a range of responses to learning your test results. These include:
- Anxiety about developing cancer. Carrying an altered gene that's linked to breast cancer doesn't mean you'll definitely get cancer. Test results can't find your exact level of risk. They can't say when cancer might develop or how aggressive the cancer could be.
- Relief about knowing your risk status. You may view your test results in a positive light: Now you know what you're up against. You can increase monitoring for signs of cancer or take steps to lower your risk, such as preventive surgery or medicines. You also have the potential to inform and educate family members who may be affected.
- Strained family relationships. Some of your relatives may not want to know that a gene linked to increased cancer risk has been found in the family. But it may be hard to not share this information with close family members if you're planning proactive measures, such as preventive surgery. Take time to think ahead about how, or even if, you'll share your test results with family members.
- Worry about passing a gene change to your child. Learning your genetic status could prompt fears that your children may have inherited the gene. If you learn that you carry a gene linked to breast cancer, this can raise questions and anxiety about when to discuss the results with your children.
- Stress over major medical decisions. Receiving a positive test result means you'll want to consider which cancer prevention and early detection strategies are best for you. Discussing options with a genetic counselor, breast specialist or oncologist can help guide you.
Talk about these or any other concerns with your genetic counselor or another member of your healthcare team.