Coping and support

A diagnosis of Castleman disease can be challenging because the condition is rare and often occurs with other serious illnesses, such as HIV/AIDS and Kaposi's sarcoma. To help you cope with Castleman disease:

• Find someone to talk with. You may feel comfortable discussing your feelings with a friend or family member, or you might prefer meeting with a formal support group.
• Set reasonable goals. Having goals helps you feel in control and can give you a sense of purpose. But choose goals that you can reach.